Project ALS @ProjectALSorg
Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS. projectals.org New York, NY Joined January 2010-
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It's time for some ALS trivia! 🧠 True or False: Approximately 90% of people diagnosed with ALS have no clear inherited genetic cause. Think you know the answer? Swipe to find out! Want to help move the science forward? Learn more: bit.ly/4zHPhhN
Meet Annelise and Olivia. This November, these sisters will join Team Project ALS at this year’s #NYCMarathon in honor of their father, who lost his life to ALS. 🏃🏻♀️💨 Support their marathon fundraising efforts here: bit.ly/4hW25tO
In this blog, Project ALS Executive Director Margot Shanahan shares how 27 women living with ALS are helping advance research inspired by Her ALS Story founder Leah Stavenhagen. Read the blog to learn how Leah's legacy continues to shape ALS research: bit.ly/47k0Kbn ♥️
The Project ALS Therapeutics Core was launched to turn ALS research into therapies and clinical tools. It connects academic labs, industry partners, and the ALS community to advance this mission. Explore how the Core is moving ALS research forward: bit.ly/4dBZUua
Meet our Emerging Leaders Board! We’re proud to introduce the Project ALS Emerging Leaders Board: 11 young professionals bringing new perspectives, energy, and networks to our mission and the fight against ALS. Meet our inaugural members and learn more: projectals.org/emerging-leade…
In 1998, our sister Jenifer was diagnosed with ALS. Her doctor told her to max out her credit cards and go see the world. There was no medicine, and she was given 2–5 years to live. We refused to accept that reality. That determination still drives us today. — Meredith Estess
This week we celebrate DAF Day! This DAF Day, put your giving to work for ALS research. Learn more about donor-advised giving and recommend a grant to Project ALS: projectals.org/dafgiving #DAFDay #DonorAdvisedFund
This holiday season, shop holiday stationery and gifts from Minted and use code FUNDRAISEPROJECTALS to enjoy 20% off your purchase. 🎁 Minted will donate 10% to Project ALS, helping support the research that moves us closer to a future without ALS: bit.ly/4yz5aHw
We ♥️ our Project ALS Family. For more than 25 years our community has helped us find and fund promising research and bring science and bold ideas the support they need to grow. All of our discovery and work is possible because of you. Fuel research here: bit.ly/3W2ViXQ
Fall is officially here, and so is your new favorite layer. 🍂 Make it clear how you feel about ALS while staying warm and dry in our new ALS Hater windbreakers. Shop the new ALS Hater windbreakers here: bit.ly/4rBOMmD
A donor-advised fund is a charitable giving account that lets you set aside funds now and recommend grants to nonprofits you care about over time. By recommending a grant to Project ALS, you can help support the collaborative research moving us closer to a future without ALS.
Meet Riley. This November, she will be taking to the streets of New York City with the rest of #TeamProjectALS at this year’s #NYCMarathon in honor of her grandmother, who lost her battle with #ALS. Cheer Riley on and support her run here: bit.ly/4y9qfry! 📢
The news we have dreamed of is finally here: the Phase 3 FUSION trial for ulefnersen, the treatment that began as jacifusen, met its primary endpoint. This is history-making news for FUS-ALS. Learn more: bit.ly/4zcHKaT
If you could ask an ALS researcher one question, what would it be? Maybe it’s about a clinical trial, a specific gene, why some treatments work for some people and not others, or maybe your question is simply, “What’s taking so long?”
Team Project ALS is officially headed back to the TCS New York City Marathon! 41 incredible runners will take on 26.2 miles through New York City with one shared goal: supporting the research working toward effective treatments and a cure for ALS. #TeamProjectALS #NYCMarathon
Jenifer’s legacy lives on in every step we take toward a future without ALS. We will not stop pushing the science forward and fighting this disease until there are effective treatments and a cure. Donate to support ALS research: projectals.org/?form=donate
The Project ALS Therapeutics Core is studying protein toxicity—the protein clumps that form in neurons not only in #ALS, but all neurodegenerative diseases. What we’re learning about protein toxicity at the Core informs drug discovery across these diseases.
We want to hear from those living with ALS: If you could save one part of yourself from the ravages of ALS, what would it be? This is a safe space for discussion, and there’s no right answer. Share with us in the comments. 🫂
There’s a lot happening in the search for effective treatments and a cure for ALS. Stay in the know with our latest research, Project ALS Therapeutics Core updates, community stories, events, and more. Join our mailing list: bit.ly/3RZOYyV 📩
@MinoShah We've made progress - thanks for asking! We had a clinical trial update in June. If you'd like a proper update, you can watch it here: bit.ly/45ZXfpL
sorry we forgot our password. we were also a bit busy continuing our mission of finding and funding a cure for #ALS. anyway, we're back.
Brian Wallach @bsw5020
142K Followers 2K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Kelsie Snow @kelsieswrites
56K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
I AM ALS @iamalsorg
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ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
AZ Latina ☮️🌊�... @aVoice4ALS
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Sadhvi Mayuri Om @Mayuri_Saxena
9K Followers 558 Following 40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Sarah Nauser @SarahNauser
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Jamie Smith @JamieLW8
4K Followers 522 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 906 Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Shah Minokadeh, M.D. @MinoShah
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ALS Uncensored 🏴�... @ScottsFight
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Lisa's Legacy for ALS @LisaLegacy4ALS
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Dr. Nadia Sethi @nadia_sethi
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ALS TX DAD @AlsDads
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Hande Ozdinler @DrOzdinler
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Mandi @RunningMama0522
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TheRealCathyS @CathyStandish
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Seth Poling @SethPoling10
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Maque @The_DRicc
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Neil Thomas @NeilHThomas65
8 Followers 41 Following
Torsten Weidauer @weidi2105
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cleverton @clevertonwzbr
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Naveen Krishnmurthy @NKrishnmurthy
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timwilliams4cw@bellso... @timwilliam64854
617 Followers 756 Following
José Antônio Moraes... @JosAntnioM1984
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سليمان @sulaimanmw
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Colleen @Colleen00946790
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Vage @Vage07387752
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Ninive @Sisley_69
106 Followers 7K Following " Mais alors, dit Alice, si le monde n'a absolument aucun sens, qui nous empêche d'en inventer un? " (Lewis Carroll)
Mars0neᅠᅠᅠᅠ�... @jebusgodlike
430 Followers 1K Following Sic semper tyrannis.🏴🏴🏴🏴 live, buy, consume, die.
Štamparija Show Me @show_me_ns
120 Followers 197 Following show me - show me - show me https://t.co/iSJGKN3oKd https://t.co/9p5jWDz3VC
Victor royal @Victorroyal4
180 Followers 3K Following
cedrick chevris @CChevris
3 Followers 249 Following
walter rodriguez @asabersipuedose
31 Followers 3K Following
aslan @ZekiAy1527838
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papo. @papo74374326
95 Followers 7K Following
Amerigo Sari @AmerigoSari
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geraldo @goodeats1980
6 Followers 3K Following
Sue Fesche @simzy47
32 Followers 193 Following RETIRED from Midwifery Group Practice Caseload Midwife;
BRL @RuthBL28
28 Followers 1K Following
Vickie Carpenter-Avar... @AvarittVic59549
1K Followers 5K Following
Jeremy Longworth @Jeremylongworth
321 Followers 579 Following Building practical AI systems, developer tools, and creative software at the intersection of automation, orchestration, and intelligent interfaces.
Betsy Krebs McGuire @betzkm
132 Followers 586 Following Mom to two awesome daughters and wife to Larry. Living my best life in Eagle, CO. Owner Operation House Blanket - non profit.
Melanin Children Matt... @ChildrenMelanin
330 Followers 344 Following Serving children, healing families and educating society; while enhancing awareness surrounding childhood rare diseases pedi-ALS/sptlc2 & resources for autism
HeyBlue71 👉🏼 @player_named
184 Followers 2K Following ALS has dealt me a bad break. Former NCAA Baseball Umpire.
Chris from NWI @ChrisN19308325
67 Followers 369 Following Cubs, Bears, Bulls... College Educated and recently alienated former Republican. Not liberal but I definitely vote Blue! (have you seen the other option?)
Anton Calabrese @anton_calabrese
1K Followers 2K Following Structural Proteomics | @AstburyCentre | @MassSpecLeeds | Dog owner | Amateur gardener | (He/him) 🇦🇺👨🏼🔬🔬☕️🍺✈️🐶
@EquiScale @Ludo_Equiscale
7 Followers 64 Following Ingénieur en informatique. Fatigué des abonnements à 20€/mois pour gérer mon patrimoine, j'ai codé ma propre solution. Je construis https://t.co/GcBegfKvHb en public.
Lucy Green @RussetGreen12
0 Followers 12 Following
Kai Chong Gui @KaiChongGui1
8 Followers 405 Following
David Strittmatter @DavidStritt
280 Followers 1K Following Husband and father. History professor. Sports fan. Iowa native. Philatelist. Traveler.
Zehra O. Ulu, PhD @zehraoulu
34 Followers 862 Following
Center for Medicare A... @CMAorg
5K Followers 2K Following A national nonpartisan, nonprofit law organization working to advance access to comprehensive #Medicare coverage and quality #healthcare.
Orange County Website... @ocwebsites714
369 Followers 3K Following We are an Orange County based creative agency that helps local businesses get online, sell their services and build their brand reputation. 714-612-3911.
Osama Afif @osamaafif11
43 Followers 3K Following
Walker Runnels @WalkerRunnels
313 Followers 3K Following Walker Runnels | Cerebral Palsy, driven by resilience and curiosity | AI, robotics, longevity & a taste for risk | Smart, stubborn… and a fan of the ladies.
Tsarbaev Boris @BorisTsarbaev
10 Followers 173 Following
YingFang Zhang @YingfangZh8485
2 Followers 28 Following
许福记 @ChriskaichunXu
1 Followers 25 Following We are ALS patients from China. It has been two years since the onset of symptoms. Diagnosed in the hospital for one year. Nice to meet you.
Eric Rosen @ericdrosen
70 Followers 4K Following
Brian Wallach @bsw5020
142K Followers 2K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Kelsie Snow @kelsieswrites
56K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
I AM ALS @iamalsorg
27K Followers 718 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
AZ Latina ☮️🌊�... @aVoice4ALS
4K Followers 6K Following Advocate for people w/ALS & Amyloidosis (that killed Mom). FDA must do more for Rare Diseases. #DyingWaiting Dodgers Rams & Trojans Fan
Sadhvi Mayuri Om @Mayuri_Saxena
9K Followers 558 Following 40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Sarah Nauser @SarahNauser
15K Followers 569 Following Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl
Shah Minokadeh, M.D. @MinoShah
5K Followers 829 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Steve Gleason - "Live... @SteveGleason
181K Followers 293 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 844 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
ALS TX DAD @AlsDads
2K Followers 815 Following
Chris Snow @ChrisSnowCGY
24K Followers 186 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
Mandi @RunningMama0522
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TheRealCathyS @CathyStandish
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Seth Poling @SethPoling10
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ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
No More Excuses ALS W... @als_now
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Dave Shore @Dave_Shore
3K Followers 5K Following CEO/President | 30+ yrs in Sports Media | Former @espn on-air & executive| Former Sideline reporter @Lakers @Mavs @espnradio | Podcast Host “The Gameplan”
S. Preston @PootPoot
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Karl Ravech @karlravechespn
201K Followers 565 Following Very proud dad. ESPN's MLB/Little League/College World Series, College basketball play by play. #Pugpower and the Great Christino. IG ravech.karl
Jim Gentleman @amusingentleman
420 Followers 63 Following
Dr. Stacy Lewin @FarberStacy
485 Followers 397 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
TeamJacobWV @TeamJacobWV
869 Followers 316 Following Jacob Harper, 24, diagnosed with ALS in March, 2022! Fighting for a cure through a clinical trial at Ohio State University! "Genetic FUS-Gene Mutation" (P525L)
Tim Miller @TimMillerNeuro
230 Followers 7 Following Tim Miller, MD, PhD is a neurologist, neuroscientist with an interest in neurodegenerative diseases including ALS and dementias.
Emily Waldon @EmilyCWaldon
46K Followers 5K Following Detroit Tigers Prospect writer @BaseballAmerica | National Prospect writer for @JustBB_Media | SABR Award Winner | Cancer Fighter | Romans 8:31
Jamey219 @JameyP21
147 Followers 657 Following Dad, husband, coach. ALS advocate & involved in community,family, etc.
Sarah Langs @SlangsOnSports
161K Followers 3K Following @MLB. Previously: @ESPN, @CSNChicago, @SNYtv & @MetsBlog. Plus, @UChicagoCollege and @ChicagoMaroon sports. Go Maroons. (Views my own.) https://t.co/WkFKDYgJ9B
Your ALS Guide @YourALSguide
409 Followers 126 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
HopOnACure @HopOnACure
627 Followers 85 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv
Becky Mourey @becky_mourey
567 Followers 279 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
Morris ALS Principles @ALSprinciples
284 Followers 19 Following
John Robinson @CWOB_Ancient
427 Followers 359 Following Irreverent Redleg CW5-for-Life, Jedi Knight, EdD, pALS. IG: cwob_ancient
HHMI @hhmi_science
52K Followers 4K Following We invest in scientists at all career stages who make discoveries that advance human health for decades to come.
Leslie Vosshall PhD @leslievosshall
23K Followers 823 Following Toward Excellent, Inclusive, & Open Science. Opinions are my own and do not reflect those of my employer. See also @leslievosshall.bsky.social
Her ALS Story @HerALSStory
2K Followers 147 Following We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
Cure MND @CureMND
1K Followers 3K Following Six people a day die with Motor Neurone Disease (#MND) / UK. @MHRAgovuk & @NICEcomms should conduct an Accelerated Review for existing treatments.
Tom Ford @TFordATC
2K Followers 2K Following Husband, Father, Grampa, Athletic Trainer and Harlem Shake extraordinaire! Now living with ALS. https://t.co/gShaorNnU8
Christa Thompson @thompsontweach
776 Followers 301 Following she/her All views and opinions expressed here are my own.
Shelly Hoover @shellyhoover
4K Followers 3K Following Writer, Veteran, & ALS Warrior. Timeless Sisters available on Amazon now! #FunFact - I type with my eyes. #WritingCommunity #ReadingCommunity #Gratitude
Rep. Frank Pallone @FrankPallone
61K Followers 3K Following #NJ06 Congressman. Top Dem on @EnergyCommerce. Fighting to lower Rx costs, protect our shore, & hold corporate polluters accountable. Long Branch born & bred.
Evan Campa @EvanCampa
3K Followers 1K Following Planting a beautiful garden in a pile of shit (ALS). Mama to 2 little loves, wife of @ebencathey. UIUC, VU & Peace Corps alum. Autism consultant @VanderbiltU
Brenda Cruz @lneedthesun
334 Followers 205 Following Mom of two amazing teens and wife of an ALS warrior. #liveinthemoment
Paralyzed Veterans of... @PVA1946
22K Followers 11K Following Veterans service organization advocating for Veterans with spinal cord injury & disease since 1946. #PVAUnstoppABLE
Puppers @PuppersTV
77K Followers 420 Following 12 Year Streamer Full Time Partner For @Twitch @Youtube @DeadByBHVR I Have Terminal #ALS Twitch https://t.co/Yz85kqPyLz Youtube https://t.co/YlfqjwdfHm Instagram https://t.co/kDyryLN0RT
Holly Fernandez Lynch @HollyLynchez
5K Followers 639 Following Bioethics+law faculty @PennMEHP/@PennCarey_Law studying IRB quality (https://t.co/IknSpy21wk), preapproval access to investigational drugs, FDA pharma policy, + psychedelics
Franki @FrancescoAm
885 Followers 482 Following @UNICEF Raising money for good causes with and through emotions. Views and RT are mine. The rest is boring
Max Gelman @MaxGelman
2K Followers 482 Following Reporting on pharma and biotech, @endpts. Baseball fan, Northwestern alum. Email: [email protected]
MDA Advocacy (Archive... @MDA_Advocacy
2K Followers 333 Following MDA's Advocacy empowers the voice of the @MDAorg community & protects the interests of those we serve.
Daily Runner @AtassiNazem
229 Followers 107 Following
QurAlis @QurAlisCo
570 Followers 245 Following QurAlis Corp. is a private clinical-stage #biotech driving #precisionmedicine breakthroughs for #ALS and other #neurodegenerative and #neurological diseases.
Jinsy Andrews, MD @JinsyMd
492 Followers 31 Following Neurologist, Part time volleyball and softball enthusiast. Opinions shared here are my own personal views.
Fernando G Vieira @FGVoneforty
537 Followers 830 Following Dad. CEO & CSO at ALS TDI. Talk less, work more. Opinions expressed on this account are my own.
Bridging Voice @BridgingVoice
169 Followers 33 Following Non-profit enabling people w/ ALS to connect & communicate w/ family, friends & the broader world using assistive technology.
Dr Marc Litt @DrMarcLitt1
552 Followers 699 Following Father | Husband | Former Osler Marine | Interventional Cardiologist|ALS affected physician|Lover of National Parks|Sometimes artist
n-Lorem Foundation @n_lorem
1K Followers 556 Following Non-profit discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life
ALS Action Canada @ALSAction
1K Followers 707 Following We're Canada's first and only ALS patient-led nonprofit organization fighting to #EndALS forever. Join us! Charitable organization BN: 791367204 RR 0001
Compassionate Care AL... @ComCareALS
639 Followers 402 Following CCALS is a nonprofit offering individualized support to those living with ALS, their families & caregivers since 1998.
Brittany Mroczek 💜 @cherise77
1K Followers 906 Following My Dad was diagnosed with #ALS in July 2018. Please join me in the fight to bring awareness to this disease and #EndALS @ALSAction
Dr. Aaron Zelikovich @aszelikovich
3K Followers 920 Following @LenoxHill @Northwell Neuromuscular Physician via @PennNeurology NM Fellow & @WCMCNeurology Resident Interests: Clinical Trials || Neuromuscular Medicine
Jonathan C. Grima, Ph... @JGRIMA62
502 Followers 2K Following #ForbesUnder30 in Science | MD Full-Tuition Scholar @GWSMHS | Neuro PhD (NSF&F31) @HopkinsMedicine | Neuro BS @UofR |#1stGenYou might like
